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4:44 pm
April 9, 2010
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ExpertPatient
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A friend of mine in uni was undergoing testing for CF. She was 19, and was told that apparently a few percent of sufferers do not become symptomatic till approaching the 20s. They have a much better prognosis than childhood or from birth sufferers. Had you ever heard of this?
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4:53 pm
April 9, 2010
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PokerBoyd1
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That is a real bummer I am sure. But from what I am reading around the sites and everywhere the later in life you develop CF the higher your medical treatment success.
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8:02 am
April 14, 2010
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RahQ
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| Member | posts 10 | |
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CF is an
inherited disease of your secretory glands, including the glands that make
mucus and sweat. And the worst of this is that you will never know if your not going to have one because people who have CF inherit two faulty CF
genes—one from each parent. The parents likely don't have the disease
themselves.
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1:25 pm
April 14, 2010
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Sims
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6:57 am
April 18, 2010
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jes_ahT
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The pattern of development of CF and the severity of its symptoms varies among individuals. The disease is sometimes obvious soon after birth, but some cases of CF, they are not detected for months (in infancy) or years (in childhood).
In babies and infants, the symptoms of CF are:
* persistent diarrhea
* bulky, foul smelling and greasy
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6:10 am
May 9, 2010
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stressmommy
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I have never heard that the later in life you develop this that the better your treatment chances are but that would be promising who do get this later on.
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6:59 am
May 9, 2010
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BobbyJo
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I've never heard of anyone getting it later in life either. I know that the life span of people with CF is getting longer and longer these days. It's a very sad disease, sad to see the kids who have it and try to deal with it.
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